A personal reflection on ADHD

The Government’s independent review into ADHD and autism begins by recognising the impact these conditions can have on people’s lives:

“Attention deficit hyperactivity disorder (ADHD) and autism are neurodevelopmental conditions, strongly genetically influenced and present from early life, influencing attention, communication, behaviour, learning and how people experience the world. With the right adjustments, many people live full lives, but some face substantial difficulties and lifelong high support needs.”

Having very, very recently received my own diagnosis of ADHD, I find the prospect of a 599-page independent review into ADHD, autism and mental health somewhat daunting.

The diagnosis I waited three years for on a waiting list, but in reality have waited my whole life for because I was missed, has given me back my peace of mind. It has validated how I feel and now means that I can access treatment, including an ADHD coach and medication.

I feel relieved to have received my diagnosis, having been one of the 560,000 people waiting for an assessment at the end of 2025.

And I only received my diagnosis because I exercised my Right to Choose.

I chose Care ADHD, so I find it incredibly difficult to accept that questions are being raised about the quality of assessments carried out by private providers.

My care was excellent.

I completed 14 different forms before my assessment, and my family were included in the evidence-gathering stages.

The comprehensive 38-page report I received was certainly no summary. It was thorough, well written and informed by a skilled professional.

The clinician who assessed me took her time to understand me fully during the most caring and kind assessment I have ever been given in my life.

I actually cried with relief at the end.

Hearing the outcome was emotional. She was simply wonderful, and I felt heard for the first time.

I find myself reflecting on what this review, and the conversations surrounding it, will bring up for so many people.

The perimenopause has, without question, exacerbated my symptoms, and I have worked harder than I ever have in my whole life to run my business whilst being quietly exhausted in the background.

Yes, we may mask well!

But that doesn’t mean the difficulties aren’t there, or that they haven’t been there for a very long time.

Previous conferences have welcomed an exceptional range of keynote speakers and coThe thing is, they aren’t even sure we are being overdiagnosed. It is a mere possibility.

Yet that uncertainty is not what we are seeing in some of the headlines and media coverage, and that feels so disappointing.

We are real. We are valid. And many of us have not been seen or supported our whole lives.

I urge the Government to proceed with caution and not jump to conclusions that could deprive people of an ADHD diagnosis when they meet the diagnostic criteria.

People have a right to understand themselves better and to receive the treatment they may wish to access to improve their quality of life.

For those of us who have spent a lifetime wondering why things have felt so difficult, finally being heard and understood can mean everything.

Sarah Henry

If you are looking for information, support or guidance around ADHD, ADHD UK provides resources for people affected by ADHD, including information about diagnosis, treatment and living with ADHD.

⁠Visit ADHD UK